When a loved one has a disability, ensuring their long-term care and financial security is a top priority. In North Carolina, planning for the future of a family member with special needs involves not only understanding their unique needs but also navigating the legal complexities of estate planning to ensure they are cared for after you’re gone.
At Cline Donaldson Law Firm, we recognize the importance of creating a plan to provide for a loved one with special needs while also protecting their eligibility for government benefits like Medicaid or Supplemental Security Income (SSI). With the right tools and strategies, you can give your family member a secure future without jeopardizing their access to vital resources.
Let’s explore the key legal considerations involved in planning for a loved one with special needs in North Carolina and how our firm can guide you through the process.
What Is a Special Needs Trust and Why Is It Important?
A Special Needs Trust (SNT) is one of the most powerful estate planning tools for families with a loved one who has a disability. The purpose of a special needs trust is to hold assets for the benefit of the individual with special needs, while ensuring that those assets do not interfere with their eligibility for government benefits such as Medicaid and SSI.
Without a special needs trust, any assets inherited or received by the individual could disqualify them from these critical benefits. Medicaid and SSI are needs-based programs, meaning the beneficiary must have limited income and assets to qualify. However, with a well-structured special needs trust, the funds are not counted as part of the beneficiary’s assets, allowing them to continue receiving government support while benefiting from additional resources provided through the trust.
How Does a Special Needs Trust Work in North Carolina?
In North Carolina, a special needs trust is typically established by a parent, grandparent, or legal guardian and can be used for a variety of purposes, including medical expenses, education, personal care, or even recreational activities. The trust is managed by a trustee, who is responsible for ensuring the funds are used in accordance with the beneficiary’s best interests, while still adhering to Medicaid and SSI guidelines.
There are two main types of special needs trusts:
- First-Party Special Needs Trust (Self-Settled Trust): This type of trust is funded with assets that belong to the individual with special needs, such as an inheritance or settlement. While it can help preserve Medicaid and SSI eligibility, it must include a provision that ensures the remaining assets in the trust will be used to repay Medicaid after the individual’s death.
- Third-Party Special Needs Trust: Funded by a family member or another individual (rather than the person with special needs), this type of trust is typically used to hold assets that are intended to benefit the individual without being counted against them for government benefits. A third-party trust does not require repayment to Medicaid after the beneficiary’s passing, making it a more flexible option for families.
Additional Legal Strategies for Special Needs Planning
While special needs trusts are a central part of the planning process, there are other important legal considerations that should be addressed to ensure the long-term well-being of your loved one. Here are a few strategies that may be helpful:
Designation of a Guardian or Conservator
If your loved one with special needs is unable to make medical or financial decisions on their own, it’s crucial to have a legally designated guardian or conservator. In North Carolina, a guardian is appointed by the court to make decisions for the individual, while a conservator manages their financial affairs. This legal process is essential to ensure that someone you trust has the authority to act on your loved one’s behalf, particularly if they are unable to do so themselves.
Reviewing Beneficiary Designations
It’s important to review the beneficiary designations on life insurance policies, retirement accounts, and other financial assets. If these assets are designated directly to your loved one with special needs, they could inadvertently impact their eligibility for government assistance. Instead, you may want to direct these assets to a special needs trust to ensure the funds are properly managed and protected.
Establishing a Letter of Intent
While not legally binding, a Letter of Intent is a document that provides valuable guidance on how you envision your loved one’s care and support after you are gone. This letter can outline your loved one’s preferences, medical history, daily routine, and any other important information that can assist future caregivers in providing the best care possible. It’s an important supplement to a formal estate plan.
What to Keep in Mind When Planning for Special Needs in North Carolina
In North Carolina, there are additional considerations to keep in mind when planning for the future of a loved one with special needs:
- North Carolina’s Medicaid Rules:
Medicaid is a critical resource for individuals with disabilities. However, the rules governing eligibility in North Carolina can be complex, and it’s important to ensure your special needs trust is structured in a way that does not jeopardize access to these benefits. - North Carolina’s Guardianship Laws:
North Carolina has specific laws related to guardianship, and it’s important to follow the proper legal procedures to ensure your loved one’s needs are met. Our firm can help you understand the process and ensure the appointment of a guardian is handled correctly. - Access to State Resources:
North Carolina offers various services and resources for individuals with special needs, including the North Carolina Division of Mental Health, Developmental Disabilities, and Substance Abuse Services (NCDHHS). We can help you connect with these resources and ensure that your loved one has access to the appropriate support systems.
Start Planning for Your Loved One’s Future Today
Planning for the future of a loved one with special needs can seem overwhelming, but it doesn’t have to be. With the right strategies in place, you can ensure that your loved one’s needs are met without sacrificing their eligibility for essential government benefits.
At Cline Donaldson Law Firm, we specialize in special needs planning and can help you navigate the complexities of North Carolina’s legal system. We’ll work with you to develop a customized plan that provides for your loved one’s care, protects your family’s assets, and gives you peace of mind knowing their future is secure.
If you’re ready to start planning or would like to learn more about special needs trusts and other legal considerations, contact us today to schedule a consultation. Together, we can create a plan that works for you and your family.

About the Author
Scott Donaldson
As one of the founders of Cline Donaldson PLLC, Scott Donaldson leverages his background in law enforcement to provide exceptional representation across core practice areas, including personal injury law and estate planning. Before founding his Wilmington-based firm in 2023, Mr. Donaldson honed his understanding of the law as a Lieutenant in the esteemed New York City Sheriff’s Office.
He subsequently graduated cum laude from Campbell University’s Norman Adrian Wiggins School of Law, earning the Law School Book Award for demonstrating exceptional mastery of complex legal subjects. With an extensive legal background, Mr. Donaldson brings authoritative experience and insight when navigating each client case. He remains dedicated to upholding the highest legal standards and achieving optimal outcomes for all he represents.